jump to navigation

Barrow HH Team Update August 29, 2014

Posted by mvarlan in Uncategorized.
comments closed

Many patients have asked me why Barrow Neurological Institute (BNI) can be found at St. Joseph’s Hospital & Medical Center (SJH) as well as Phoenix Children’s Hospital (PCH). Here is the reasoning.

 A few years ago the health care system St. Joseph’s Hospital operates under made the decision to transition inpatient pediatric care to Phoenix Children’s in order to concentrate the pediatric specialists at one hospital. Until that time pediatric care was somewhat disjointed as many hospitals offered pediatric care. A deal was struck, and Barrow pediatric physicians transitioned to PCH.

What this means for our HH patients is that the HH team now co-exists at both hospitals. Patients under 18 years of age are discussed at the adult HH conference and treated at Barrow. Our younger patients are reviewed and treated at PCH. Since the transition, our HH team at both hospitals has grown, which has increased our ability to offer greater clinical expertise and expand research opportunities.

8-01-14 HH group-1

Back Row from left: Matthew Troester, DO, Andrew Shetter, MD, John Kerrigan, MD, Peter Nakaji, MD, Ratan Bhardwaj, MD, George Prigatano, PhD

 Front Row from left: Laura Knecht, MD, Oliver Oatman, MD, Maggie Bobrowitz, RN, Ruth Bristol, MD, Laura Lehnhoff, MD,  Padmaja Bollam, MD

Missing are the following physicians: Drs. Randa Jarrar, Korwyn Williams, Raymond Bunch, John Fulton, Donald McClellan, and Erin Prenger.  

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

 

Ice Bucket Challenge for HH? August 29, 2014

Posted by mvarlan in Uncategorized.
comments closed

We have all seen many ice bucket challenges for ALS if not directly participated in them ourselves. If there was anyone unfamiliar with ALS before this internet sensation, I would imagine they are familiar with it now.

Why has the HH community not come up with our own compelling quest to raise awareness? We should take advantage of the enormous potential for exposure the Internet can provide.  The ice bucket challenge has saturated the market so we need to develop a unique campaign. Any suggestions?

Click here to watch an ALS ice bucket challenge from one of our HH patients treated by Peter Nakaji, MD.

 

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

Transitioning to Adult Medical Care August 14, 2014

Posted by mvarlan in Uncategorized.
1 comment so far

Transitioning into an adult model of care is challenging for those with chronic and/or congenital medical conditions. Exploring the unknown world of an adult health care system can be the harsh opposite of the warm and friendly pediatric doctors. Parents are already burdened with the daily challenges and often don’t have anything left to plan for the future.

Our (HH) young adults (18 years of age +) have varying abilities to lead an independent life. The intent of transition programs is to create an atmosphere which fosters their independence and empowers them to take control over their health care.

I am currently working on a pilot program for transitional care at Phoenix Children’s Hospital with Dr. John Kerrigan. I hope to develop a pathway which transitions those with multidisciplinary needs in a manner that interrupts the young adult’s life as little as possible. Adolescence is challenging enough period in one’ s life without the complexities of health care.

Lisa & CJ Soeby are participating in this pilot program, which we hope to wrap up in the next couple of months. If any of you out there have already transitioned (yourself or your child) and would like to share your positive or negative experiences with me I would be happy to include them in my recommendations.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

 

Medtronic Acquires Visualase July 30, 2014

Posted by mvarlan in Uncategorized.
add a comment

In a statement provided by Bill Hoffman, CEO of Visualase, “The transaction with Medtronic is critical to ensure more patients have access to our beneficial technology. We are proud of the MRI-guided laser ablation technology and other products we have developed and their impact on the well-being of patients.”

The Barrow HH team will continue to work with this company to provide minimally invasive treatment options for our patients as we have done for the last two years. Our team is excited about the possibilities this acquisition can offer.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

Black Tie Gala – Epilepsy Foundation of Arizona July 24, 2014

Posted by mvarlan in Uncategorized.
add a comment

Another great opportunity to raise awareness and funding for epilepsy research is coming soon!

The annual Black Tie Gala is a highly anticipated social event which bonds a community in support of a great cause.

The Epilepsy Foundation of Arizona has been established as a leader in epilepsy education and continues to strive to provide forward-thinking programs and resources.

Your attendance at the Gala makes a bold statement of your support of the individuals who live with this challenging disorder.

If you are interested in sponsoring the Epilepsy Foundation of Arizona’s Gala, please contact (602) 406-3581, email at info@epilepsyaz.org, or download the form below to complete and send to us.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinato
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

Follow up to Holly’s Story! July 10, 2014

Posted by mvarlan in Uncategorized.
add a comment

Learning about another person’s HH journey might help you on yours.

Watch Holly’s recovery since undergoing surgery at Barrow Neurological Institute with Peter Nakaji, MD. She shares her positive outlook on her experience and her future.    

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

Family’s Loved Ones Take Ice Baths to Raise Money for HH Treatment June 26, 2014

Posted by mvarlan in Uncategorized.
add a comment

Acts of kindness may often seem too small to make much of a difference, but in actuality can move mountains.  Watch this video of one HH family’s friends & co-workers banding together to help raise money for treatment at the Barrow Hypothalamic Hamartoma Center.

 

 

Regards, Maggie Bobrowitz, RN, MBA

Neuroscience Program Coordinator

Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital

Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

Why Experience Matters June 13, 2014

Posted by mvarlan in Uncategorized.
add a comment

Subspecialty programs like the Barrow Hypothalamic Hamartoma Center unite several areas of medical expertise.

The collaboration of these sub-specialty programs provides a sense of encouragement and comfort to those patients seeking a collection of qualified individuals within different specialties in one location. Barrow is one of the few institutions in the country that can offer such comprehensive services to the members in the local community and worldwide.

Through numerous clinical analysis and research studies a great deal of effort is placed on designing a clinical pathway which reflects the practice in the care of patients with HH.

Whether you are seeking a second opinion or primary care for your condition make sure you are engaging a team with a proven strategy. This graphic can help you find your way through the treatment process.

Algorithm fullpage

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

Barrow Neurological Institute on Prime Time! June 5, 2014

Posted by mvarlan in Uncategorized.
add a comment

Barrow Neurological Institute was mentioned last week in the series premier of The Night Shift, a new medical drama series on NBC. This show is comparable to Grey’s Anatomy and ER. Barrow is credited in the episode for our surgical innovation during an internal decapitation case.  We have received a lot of national news coverage in the past couple of years about this procedure; and a Phoenix toddler, Micah Andrews, was saved at Barrow and made headlines. Now, it is primetime!

The Night Shift

Transcript: You’re going to need to attach the skull directly to the spine.
What keeps it in place?
A titanium loop. use the wires to secure it to the base of the skull and remove a piece of his rib to fortify it. They’ve had success with the procedure at barrow in phoenix. I observed it at a seminar there last spring. It will work. It’s our best option. 

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

A Compassionate Mother May 30, 2014

Posted by mvarlan in Uncategorized.
add a comment

Compassion has been defined as the feeling that arises when you are confronted with another’s suffering and feel motivated to relieve that suffering. Many of us feel compelled to help our family and friends when we see them work through challenges in their lives.  There are others who extend this act of kindness to those outside of their inner circle.

A couple of years ago I met a woman who continues to serve people she will never meet.  She is the mother of a young boy who is recovering from his second HH surgery.  Rather than focus on what others can do for her son, she reaches out to families coming to Barrow for treatment and offer her support.

Kathy builds gift bags full of snacks, reading materials, and warm fuzzy slippers for HH patients and their families.  I pass them on to the families to maintain their privacy. The bags aren’t just full of comfort food & other goodies. They send a message of compassion to families who may feel isolated and scared.

We have two patients coming to Barrow next week for the laser thermoablation procedure. Although Kathy’s son is recovering from surgery done just last week, she has already dropped off gift bags for these patients.

Our mission at Barrow includes delivering compassionate, high-quality patient care. Employees who demonstrate compassionate behavior are often featured internally through our recognition programs. If we had a program to recognize family members, Kathy would be at the top of my list!

Kathy doesn’t behave out of a need for recognition or praise.  She simply just cares about others and what they are going through. I’m not going to mention Kathy’s last name or her son’s name in order to maintain her privacy. She wouldn’t want it any other way. J.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

Follow

Get every new post delivered to your Inbox.

Join 1,344 other followers