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Patient Symposium Details July 27, 2012

Posted by mvarlan in Uncategorized.
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We are pleased to be able to provide you with more details about the upcoming HH Symposium for Patients & Caregivers on November 10, 2012. Please see the attached flyer. If you are planning to join us via webinar, please try accessing the webinar site soon to identify technical difficulties. Some computers will not allow you to download Silverlight therefore you’ll need to access the other alternative link to view the presentation.

Regards, Maggie

Regards, Maggie Bobrowitz, RN, MBA

Neuroscience Program Coordinator

Barrow Hypothalamic Hamartoma Center

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Registration is now available for the HH Symposium for Patients & Caregivers July 20, 2012

Posted by mvarlan in Uncategorized.
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Hello HH families,

We have been working diligently to get you more information about our symposium in November and are happy to have finalized registration details. Individuals attending in-person must register at least two weeks in advance. Register on this web page– the link for the HH conference appears near the bottom of the page.

NOTE: Please enter each attendee’s name on the registration form so we can accommodate everyone.

Please remember that we are recording the presentations and they will be available live & on demand on the Barrow website. For this reason we can only invite adults to attend in person to ensure the broadcast is not interrupted.

Those viewing the webcast do not need to register. You will be able to click on this link to access the live presentation without a user ID or password. Try connecting to this site in advance to ensure there are no technical problems with your PC. It will not be “live” until the day of the event so you will only see a place card there now.  Visit the webcast page here. It is a good idea to bookmark it now so you won’t have to search for the address later.

Have a great weekend everyone.

Maggie Bobrowitz

Regards, Maggie Bobrowitz, RN, MBA

Neuroscience Program Coordinator

Barrow Hypothalamic Hamartoma Center

Learn more about HH……………… July 11, 2012

Posted by mvarlan in Uncategorized.
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Save the date! We are partnering with Hope for HH to host an educational conference November 10, 2012 for patients and caregivers. Medical professionals are welcome as well. You are invited to attend in person or online via our LIVE webcast. We will keep the seminar available on demand through streaming video. Details coming soon!

Regards, Maggie Bobrowitz, RN, MBA

Neuroscience Program Coordinator

Barrow Hypothalamic Hamartoma Center