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Support in your area…………….. August 15, 2012

Posted by mvarlan in Uncategorized.
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Hello HH Community,

Barrow HH Center is partnering with Hope for Hypothalamic Hamartoma to establish a local support group chapter in Arizona. We will begin hosting the meetings at St. Joseph’s Hospital / Barrow & Phoenix Children’s Hospital to offer a centralized location and have convenient access to the HH experts.

The meetings will start in 2013 and likely include physician talks about compelling HH topics as well as sufficient time for patients & caregivers to interact and share their stories. More details will be available over the coming months.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center

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Comments»

1. Monica - August 27, 2012

I would like to get involvIed in a local chapter. Who can contact directly to help with this?

mvarlan - September 4, 2012

Contact me directly at (602) 406-7585 and I can help you get to the right person if I can’t help you. 🙂
Maggie

2. mvarlan - August 27, 2012

Hi Monica,
Please contact me directly to discuss this. (602) 406-7585.
Maggie

3. David Graves - August 31, 2012

Hello, I am looking for information regarding HH. Can You tell me if there are any Doctors or clinics in the Mid Tenn area that are familiar with HH?

mvarlan - September 4, 2012

Hi David,
I am not familiar with anyone in your area that specializes in this condition. Since HH is uncommon and very few physicians are experts in this area, most of our patients are from another state and/or country. For this reason we offer a multidisciplinary team review for patients free of charge. Contact me at (602) 406-7585 if you would like to pursue this.
Maggie


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