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A Great Success! November 16, 2012

Posted by mvarlan in Uncategorized.

Thanks to everyone who attended the Barrow Hypothalamic Hamartoma Symposium for Patients & Caregivers last Saturday, hosted by the Barrow Neurological Institute & Hope for Hypothalamic Hamartomas. The room was overflowing with enthusiastic participants sharing their stories and listening attentively to our experts. A special thanks to Lisa Soeby who shared her story and works tirelessly to raise awareness about HH and provide support to those affected by it.

Although there were a couple of technical difficulties for our webinar audience, we have heard that you gained valuable knowledge about HH. We are currently reviewing the program evaluations and will implement your suggestions for future topics and format design when rating the agenda for the next symposium. Feel free to make additional suggestions on this blog.

The presentations will be available for viewing on demand in this blog in a week or two. Please enjoy thee attached photos taken with some of our speakers & participants.

Regards, Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center



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