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Multidisciplinary Approach February 28, 2013

Posted by mvarlan in Uncategorized.
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The diagnosis of Hypothalamic Hamartoma brings clarity to individuals as to why they or their loved ones are exhibiting a variety of seemingly unrelated symptoms. This is why treatment for this condition requires a multidisciplinary approach for diagnosis, treatment and on-going management of lingering symptoms. Click on the link below to view the multidisciplinary team at the Barrow HH Center. Feel free to post any questions to the blog.

Adult Team

Pediatric Team

Regards, Maggie Bobrowitz, RN, MBA

Neuroscience Program Coordinator

Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital

Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

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Newly Diagnosed with HH and Feeling Overwhelmed? February 15, 2013

Posted by mvarlan in Uncategorized.
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Hello HH Community,

Individuals who have been recently diagnosed with HH are almost always in need of  details about this condition, but many quickly become overwhelmed by the large amount of information .  You can get an overview of the symptoms and treatments available for this condition by visiting the Barrow HH Program Website.

 

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

Research on the Horizon…………….. February 6, 2013

Posted by mvarlan in Uncategorized.
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Under the direction of John Kerrigan, MD, Co-Director of the Barrow Hypothalamic Hamartoma Center, we are currently collecting data for three research projects regarding HH patients who have been treated at the Barrow Neurological Institute (BNI). The categories of the projects include Gamma Knife (GK) treatment, “Giant” HH lesions, and endocrine function before & after surgery. If you feel you may meet the criteria below, please contact me to be included in the cohort.
**All those included in these studies must have been treated at BNI**

• Patients treated with Gamma Knife (GK) radiation (with or without other treatment)
• Patients who had multiple treatments (surgeries and/or GK)

Feel free to contact me with any questions.
Regards, Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

2nd International Symposium on Hypothalamic Hamartomas February 1, 2013

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Winning the fight against this condition requires collaboration between researchers and clinical experts in order to improve patient outcomes.

Dedicated specialists are meeting for the second time to share their experiences and develop strategies to promote early diagnosis and successful treatment options.

The 2nd international symposium taking place on September 21st & 22nd will be co-chaired by Drs. Jean Regis and John Kerrigan.  We will post a summary of their findings after the event on this blog.

Regards, Maggie Bobrowitz, RN, MBA

Neuroscience Program Coordinator

Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital

Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center