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Hope for Hypothalamic Hamartomas(HH) April 1, 2013

Posted by mvarlan in Uncategorized.
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Hope for Hypothalamic Hamartomas (Hope for HH) is a volunteer-based nonprofit organization founded by parents of children with hypothalamic hamartomas (HH).  Their goal is to create a single, credible source for information about the diagnosis, treatment, and support of individuals with HH. Every family touched by this rare disorder has a unique and often heart-breaking story of how they attained a correct diagnosis. If you or someone you know has been diagnosed with this condition, please contact this organization for information and support. Strength can be found in numbers.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

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1. lsoeby - April 1, 2013

Thanks Maggie – you are wonderful!


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