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HH Touches Individuals Around The World! May 24, 2013

Posted by mvarlan in Uncategorized.
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My respect and appreciation for Hope for Hypothalamic Hamartomas continues to grow as I see their efforts in reaching those affected by this condition across continents. For the past 2 weeks I have been in contact with families from Australia, Spain, Russia, Italy, and Tunisia. I have been fortunate to be able to provide them with education regarding symptoms, treatment options, and lifelong challenges. Each of these families gained the confidence to continue the struggle to find answers by connecting with Hope for Hypothalamic Hamartomas .  Kudos to HHH!

Post comments or questions to this blog or contact me directly at Margaret.bobrowitz@dignityhealth.org.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

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1. lsoeby - May 24, 2013

Maggie – the collaboration between Hope for HH and BNI/PCH has truly blessed many families! Your knowledge and professionalism has helped to shorten the time between diagnosis and treatment. Your amazing heart has helped families feel at peace with a very difficult decision – regardless of which treatment option they choose! We are forever grateful to you and the HH Teams at BNI and The BNI at Phoenix Children’s Hospital!

Lisa Soeby
Hope for HH


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