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Never Underestimate the Determination of a Mother with a Child in Need! June 11, 2013

Posted by mvarlan in Uncategorized.
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I can only imagine the flood of emotions parents experience when their child is diagnosed with a rare brain condition, let alone one that requires traveling to another part of the world for treatment. One mother I had the honor of getting to know went to great lengths to bring her child to Barrow for treatment. Karim and his mother Sarah hail from Tunisia and speak French and Arabic. This language barrier was a mere “hiccup” compared to other challenges in coming to a foreign country.

After two Gamma Knife treatments failed to control Karim’s symptoms, surgery with Dr. Ruth Bristol was the only option left. Though he speaks no English, Karim had little difficulty communicating his needs to our neuroscience nursing staff. Apparently big smiles and winking has a universal meaning!

I am so pleased to say that Karim is being discharged from Barrow at Phoenix Children’s Hospital today in great spirits, proof that there really is hope for HH!

Please post comments or questions to this blog, or contact me directly at Margaret.bobrowitz@dignityhealth.org.

 Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

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