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Transitioning to Adult Medical Care August 14, 2014

Posted by mvarlan in Uncategorized.
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Transitioning into an adult model of care is challenging for those with chronic and/or congenital medical conditions. Exploring the unknown world of an adult health care system can be the harsh opposite of the warm and friendly pediatric doctors. Parents are already burdened with the daily challenges and often don’t have anything left to plan for the future.

Our (HH) young adults (18 years of age +) have varying abilities to lead an independent life. The intent of transition programs is to create an atmosphere which fosters their independence and empowers them to take control over their health care.

I am currently working on a pilot program for transitional care at Phoenix Children’s Hospital with Dr. John Kerrigan. I hope to develop a pathway which transitions those with multidisciplinary needs in a manner that interrupts the young adult’s life as little as possible. Adolescence is challenging enough period in one’ s life without the complexities of health care.

Lisa & CJ Soeby are participating in this pilot program, which we hope to wrap up in the next couple of months. If any of you out there have already transitioned (yourself or your child) and would like to share your positive or negative experiences with me I would be happy to include them in my recommendations.

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

 

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Comments»

1. Ramiro Ortega - August 14, 2014

Hola Maggie, somos una familia de Ecuador, nuestro hijo tiene un HH, queremos contactarnos con personas con hijos con iguales problemas para cruzar ideas y comentarios.

Saludos
Ramiro Ortega


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