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Ice Bucket Challenge for HH? August 29, 2014

Posted by mvarlan in Uncategorized.
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We have all seen many ice bucket challenges for ALS if not directly participated in them ourselves. If there was anyone unfamiliar with ALS before this internet sensation, I would imagine they are familiar with it now.

Why has the HH community not come up with our own compelling quest to raise awareness? We should take advantage of the enormous potential for exposure the Internet can provide.  The ice bucket challenge has saturated the market so we need to develop a unique campaign. Any suggestions?

Click here to watch an ALS ice bucket challenge from one of our HH patients treated by Peter Nakaji, MD.

 

Regards,

Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

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