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The Rare Epilepsy Network (REN) has launched and we need YOU to participate today! November 7, 2014

Posted by mvarlan in Uncategorized.

The only way we will get answers to these critical questions is to gather information about as many HH patients as possible in one place so researchers can study trends and investigate hypotheses. To that end, Hope for Hypothalamic Hamartomas joined the Epilepsy Foundation and 9 other rare epilepsy organizations to launch the Rare Epilepsy Network (REN).

 Complete the REN survey TODAY!  

Sign up here

The REN is open to ALL US & INTERNATIONAL patients! 

For more information, please contact  Ilene Miller @ Ilenepennmilller@gmail.com or Lisa Soeby @ lisasoeby@cox.net


Maggie Bobrowitz, RN, MBA
Neuroscience Program Coordinator
Barrow Hypothalamic Hamartoma Center at Phoenix Children’s Hospital
Barrow Hypothalamic Hamartoma Center at St. Joseph’s Hospital & Medical Center

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